The power to Search your records

CMT4B3 Research Foundation has partnered with Citizen to:

  • Gather medical records for you from all of your providers
  • Get answers from your records with an AI built for rare disease
  • Power research with your anonymized data, if you choose

Get started

Trusted by patient communities

Built for rare disease families, by rare disease families

Hear from Nasha, rare mom and co-founder of Citizen Health

Citizen Health AI Advocate Demo by Nasha from David Fisch on Vimeo

Technology to ease the burden

AI designed around your needs

Access your or your loved one's entire medical history at your fingertips.

With you when you need it

Let AI Advocate record and take notes during your next medical visit.

Privacy is more than a checkbox

Citizen Health is built on a foundation of privacy and security.

Rare disease is not a rare problem

400 million people worldwide live with a rare disease

Advancing life-changing research

Thousands of Citizen Health patients consent to share their data for research purposes. That data, with privacy protected through de-identification, powers Natural History Studies that can help make new treatments available years earlier.

Because we’re patients and caregivers too

“If anyone hasn't used this yet, it is REVOLUTIONARY…

This tool was a life saver for prep for our next neuro appointment!”

— Casey Dawley

What members of our community are saying

Casey Dawley

CACNA1A Dad of Avery

Testimonial: If anyone hasn't used this yet, it is REVOLUTIONARY. I've used the AI Advocate to search and aggregate info about my child's complicated health history. Before this tool, ...

Brianna

FOXG1 Mom of Penelope
Testimonial: During a doctor’s appointment, I pulled up the AI Advocate and had everything I needed for the issue we were discussing.

Larissa

KMT2C Mom of Declan
Testimonial: The AI Advocate has been an absolute life changer…

Megan

KCNT1 Mom of Lexi
Testimonial: I’ve never been able to functionally use our medical records before...

Maggie

CTNNB1 Mom of Abby
Testimonial: Citizen Health gave us a lifeline. Through the platform, we were able to gather and centralize all of Abby’s medical history, test results, therapy notes, and specialist reports in one secure, accessible place.

Have questions about Citizen Health? We're here to support you.

support@citizenhealth.com

1-855-244-8493

The responses shown are simulated samples for demonstration purposes only. When you use Citizen's AI tools, they provide personalized insights based on your actual medical records. Always consult with your healthcare provider before making any medical decisions. Your medical information remains private and secure within Citizen Health, and is not shared with third-party AI companies or used to train their algorithms.