The power to Search your records
Danon Foundation has partnered with Citizen to:
- Gather medical records for you from all of your providers
- Get answers from your records with an AI built for rare disease
- Power research with your anonymized data, if you choose
Trusted by patient communities
Built for rare disease families, by rare disease families.
Hear from Nasha, rare mom and co-founder of Citizen Health
Citizen Health AI Advocate Demo by Nasha from David Fisch on Vimeo
Technology to ease the burden
AI designed around your needs
Access your or your loved one's entire medical history at your fingertips.
Understand your records, prepare for appointments, explore treatment options, draft school and insurance documents, and much more.
With you when you need it
Let AI Advocate record and take notes during your next medical visit.
Be present in the moment, and get detailed summaries and next steps in one place, so you never have to wonder what was said.
Privacy is more than a checkbox
Citizen Health is built on a foundation of privacy and security.
Your data belongs to you. Full stop. We protect your data along every dimension, and have received SOC2 certification of our security practices.
Rare disease is not a rare problem
400 million people worldwide live with a rare disease
Advancing life-changing research
Thousands of Citizen Health patients consent to share their data for research purposes. That data, with privacy protected through de-identification, powers Natural History Studies that can help make new treatments available years earlier.
Because we’re patients and caregivers too
“If anyone hasn't used this yet, it is REVOLUTIONARY…
This tool was a life saver for prep for our next neuro appointment!”
— Casey Dawley
What members of our community are saying
Casey Dawley
CACNA1A Dad of Avery
If anyone hasn't used this yet, it is REVOLUTIONARY. I've used the AI Advocate to search and aggregate info about my child's complicated health history. Before this tool, I could see diagnoses and dates then do a lot of digging for info. Now, I type a question and wait and can validate the info through the references from within the actual medical records without searching thousands of pages!!! This tool was a life saver for prep for our next neuro appointment!
Brianna
FOXG1 Mom of Penelope
During a doctor’s appointment, I pulled up the AI Advocate and had everything I needed for the issue we were discussing. Normally I’m flipping through a huge binder of records from three different states and multiple hospitals. Instead, I asked AI Advocate my questions, and immediately showed the doctor the response. I was mind blown - and immediately told other families, "You have to try this."
Larissa
KMT2C Mom of Declan
The AI Advocate has been an absolute life changer… I have used this to gather his information to share with his school for an IEP. I have used it to update diagnosis codes that his insurance has missed in the past... The most exciting part of using this feature was that I was able to use it to help me craft an appeal to the insurance for an adaptive bicycle. Insurance denied it three times... AI Advocate helped me make sense of the medical jargon and the insurance coding to be able to advocate for my son and give him the tools that make his life a little easier.
Megan
KCNT1 Mom of Lexi
I’ve never been able to functionally use our medical records before... there were just too many documents from the hospital. Now, I can ask about Lexi’s diagnoses, medications, procedures, even specific dates... and it pulled everything out or gave me a summary. AMAZING! Very useful.
Maggie
CTNNB1 Mom of Abby
Citizen Health gave us a lifeline. Through the platform, we were able to gather and centralize all of Abby’s medical history, test results, therapy notes, and specialist reports in one secure, accessible place.
Having everything organized in one spot made it so much easier during appointments, and removed a huge burden of paperwork and confusion. When it’s time for appointments or therapies, the AI Advocate helps us prepare — reminding us what questions to ask, helping us understand complex medical reports, and summarizing what each diagnosis and test result means in plain language.
When IEP (Individualized Education Program) meetings come up, the AI Advocate helps us get ready by summarizing therapies, progress, and needs, in a way we can bring directly to teachers and therapists. It’s also helped us explain Abby’s condition — CTNNB1 syndrome — to friends and family in a way that’s clear and compassionate. That support has made such a difference emotionally and practically, and it’s hard to imagine navigating this journey without it.
Lisa
LGS Mom of Caleb
I asked the AI Advocate how many times Caleb has had pneumonia—and it gave me a number, a table, and even the location in the lung. Then I asked about broken bones, and it separated fractures from surgeries. I especially love that I can see the references behind the answers!