# The power to Search your records

Shine Syndrome Foundation has partnered with Citizen to:

- Gather medical records for you from all of your providers
- Get answers from your records with an AI built for rare disease
- Power research with your anonymized data, if you choose

[Get started](https://patient.citizenhealth.com/login?form=register&utm_source=Shine%20Syndrome%20Foundation&utm_medium=partner+website&utm_campaign=landing+page&referrer_data=diagnosis=DLG4-related%20synaptopathy%7CpagId%3D392bac97-1d29-4c6f-8ad2-f2d17ba2204b)

Real Citizen Health community members who may not be affiliated with Shine Syndrome Foundation

Shine Syndrome Foundation has partnered with Citizen to:

- Gather medical records for you from all of your providers
- Get answers from your records with an AI tool built for rare disease
- Power research with your anonymized data, if you choose

## Trusted by patient communities

## Built for rare disease families, by rare disease families

Hear from Nasha, rare mom and co-founder of Citizen Health

Citizen Health AI Advocate Demo by Nasha from David Fisch on Vimeo

## Technology to ease the burden

### AI designed around your needs

Access your or your loved one's entire medical history at your fingertips.

Understand your records, prepare for appointments, explore treatment options, draft school and insurance documents, and much more.

[Start Now](https://www.citizen.health/login?form=register)

### With you when you need it

Let AI Advocate record and take notes during your next medical visit.  
Be present in the moment, and get detailed summaries and next steps in one place, so you never have to wonder what was said.

[Download for IOS](https://apps.apple.com/app/id6740156339)

### Privacy is more than a checkbox

Citizen Health is built on a foundation of privacy and security.

Your data belongs to you. Full stop. We protect your data along every dimension, and have received SOC2 certification of our security practices.

[Learn More](https://www.citizen.health/faq#privacy-and-security)

### Rare disease is not a rare problem

400 million people worldwide live with a rare disease

## Advancing life-changing research

Thousands of Citizen Health patients consent to share their data for research purposes. That data, with privacy protected through de-identification, powers Natural History Studies that can help make new treatments available years earlier.

## Because we’re patients and caregivers too

Farid Vij

CEO, Co-Founder  
Helping navigate the medical system for his father-in-law facing cancer.

Nasha Fitter

CBO, Co-Founder  
Caring for her daughter, Amara, with a rare genetic disorder.

Deven McGraw

Chief Privacy Officer  
Dedicating her professional life to making it easier for fellow patients to get their medical records.

### What members of our community are saying

Casey Dawley  
CACNA1A Dad of Avery  
“If anyone hasn't used this yet, it is REVOLUTIONARY! This tool was a lifesaver for prep for our next neuro appointment!”

Brianna  
FOXG1 Mom of Penelope  
“During a doctor’s appointment, I pulled up the AI Advocate and had everything I needed for the issue we were discussing.”

Larissa  
KMT2C Mom of Declan  
“The AI Advocate has been an absolute life changer.”

Megan  
KCNT1 Mom of Lexi  
“I’ve never been able to functionally use our medical records before. Now, I can ask about Lexi’s diagnoses.”

Maggie  
CTNNB1 Mom of Abby  
“Citizen Health gave us a lifeline.”

## Have questions about Citizen Health?
  We're here to support you.

[support@citizenhealth.com](mailto:support@citizenhealth.com)
1-855-244-8493

The responses shown are simulated samples for demonstration purposes only. When you use Citizen's AI tools, they provide personalized insights based on your actual medical records.